COPD depicted – patients drawing their lungs

Ad A Kaptein,¹ Jitske Tiemensma,² Elizabeth Broadbent,³ Guus M Asijee,^4,5Maarten Voorhaar^4,5

¹Medical Psychology, Leiden University Medical Centre (LUMC), Leiden, the Netherlands; ²Psychological Sciences, University of California, Merced, CA, USA; ³Psychology Department, Auckland University Medical School, Auckland, New Zealand; ⁴CAPHRI School for Public Health and Primary Care, Maastricht University, Maastricht, the Netherlands; ⁵Boehringer Ingelheim Pharma GmbH & Co. KG, Ingelheim am Rhein, Germany

Background: Given the increasing importance of patient-reported outcomes (PRO) in quality medical care, we examined the value and feasibility of an innovative method for assessing patients’ illness perceptions, represented in drawings made by patients with COPD of their lungs.
Aim: The aim of our study was: to study patients’ representation of COPD as reflected in their drawings of their lungs; and to examine scores on a validated measure that assesses illness perceptions (ie, Brief Illness Perception Questionnaire [B-IPQ]).
Patients and methods: One hundred outpatients with COPD, mean age 70 years, selected from a pharmacy database, participated and 98 filled out the B-IPQ. Eighty-seven patients completed the drawing task.
Results: The illness perceptions as reflected in the responses to the B-IPQ scales represented a quite optimistic view of COPD and its consequences. The drawings of the lungs reflected a considerable discordance between patients’ representations and medically accepted representations of lungs of a person with COPD.
Conclusion: Assessing illness perceptions in clinical care and research about COPD offers opportunities to identify goals for patient education and self-management. Inviting patients to draw their illness is an innovative and promising approach to assessing PRO.

Keywords: COPD, drawings, illness perceptions, PRO, quality of life, self-management

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